As many of you know, for the past two years the Canadian autism community has been working on a proposal for a Canadian Autism Partnership (CAP). The expert working group tasked with this project has finished its work and the Executive Summary of their report can be found here.
The report includes a request for funding that would come from Budget 2017. Last week, I asked Health Minister Jane Philpott a question in Question Period, requesting support for the proposal. We have posted the question and answer on our Facebook page, with a call for action in support of the CAP. Here is the link: https://www.facebook.com/MikeLakeMP/videos/1330076580356533/.
‘It made me want to do more in Fort McMurray, but because we were so well set up, it was hard to come back’
By Travis McEwan, CBC News
Kirsti Mardell, and her 6-year-old son, Quentin who has a non-verbal form of autism.
Kristi Mardell got the keys this week for an office where Fort McMurray’s autism society will soon set up shop, good news that came five months after she and other members fled the wildfire with their children.
Many society members went to Red Deer or Edmonton in the days after the wildfire. The forced evacuation was especially stressful for autistic children, who need specific help and programs most children don’t require.
A handful of society members haven’t returned since the city reopened in June, because the supports and classes for their children were better than those provided in Fort McMurray.
“We evacuated to Red Deer and we were well setup there, and the services we got kicked in right away,” said Mardell, president of autism society in the Regional Municipality of Wood Buffalo. “Our kids had support in school right way. It was amazing how fast and supportive the other communities were compared to Fort McMurray.
“It made me want to do more in Fort McMurray. But because we were so well set up, it was hard to come back.”
Autism Canada has released a useful language and communication guide to help media, organizations and the general public use words appropriately when talking about autism. It’s a short and informative read, and you can check it out here.
Children with autism become adults with autism, and we need to make sure that these adults have access to a safe, comfortable and dignified living environment – even after they outlive their parents. The Government of Canada is currently developing a National Housing Strategy, and this is our chance to help set the agenda for housing for adults with autism and other disabilities. The more people who tell the government this is important, the more chance we have of being heard. With 1 in 68 children now being diagnosed with autism, we need the government to know that this is a huge problem that won’t be going away anytime soon.
To make your voice heard, you can fill out a short online survey here. Or make an even bigger impact by writing a letter or submitting your own ideas online. To see all the ways you can get involved, visit letstalkhousing.ca. The deadline for submissions is this Friday, October 21, 2016.
Are you an independent adult with autism spectrum disorder or Asperger’s syndrome?
Would you be willing to talk about your experience of self-determination?
The Centre for Autism Services Alberta is sponsoring a study to identify new practices to promote the self-determination of individuals with autism spectrum disorder.
Self-determination is , “people controlling their own lives and their own destinies” (Wehmeyer & Schwartz, 1998,
p. 76). Greater self-determination is linked with higher quality of life in individuals, including those with autism
spectrum disorder (Shogren, Wehmeyer, Palmer, Rifenbark & Little, 2015; Wehmeyer, 1999; and Wehmeyer and Schwartz, 1998).
Why: To determine ways for the Centre for Autism Services Alberta to promote the self-determination of people with autism spectrum disorder ASD.
Who: Independent adults with ASD (or Asperger’s syndrome)
What: Participate in a 30 to 45 minute interview to share your stories related to your own self-determination. What has helped you to be self-determined? What has hindered your self-determination?
How: Interviews can take place face-to-face in a location that is comfortable for you, or through email, or via Skype. Reasonable expenses to participate may be reimbursed (e.g. parking costs).
For more information contact:
Jackie Ryan, Master of Arts in Leadership Student at Jackie.email@example.com
We strongly encourage you to write your Member of Parliament and ask how their Party platform will support autism and the Canadian Autism Partnership in the federal election on October 19.
Click here for a letter template in a customizable format for your convenience. Please feel free to copy the text to your preferred letterhead, customize it with your MP’s name and Party, and mail or email it to them as soon as possible.
CASDA has already sent letters to each of the five federal Party Leaders, including the Prime Minister, requesting their response to this important question. We want our Members of Parliament to hear the autism community’s voice loud and clear, and to know that we are listening for their response. For responses received to date please visit the CASDA website.
Parents needed for research study on personal growth of parents of children with autism spectrum disorder (ASD)
Are you the parent of a child who has been diagnosed with autism? We are investigating the coping strategies used by parents and the personal growth experiences they have in raising children with ASD.
Click here to learn more
In the coming months, we’ll be bringing you cutting-edge research featuring the latest insights into the world of ASD. In a new paper, Dr. David Nicholas, researcher and parent of two children with ASD, looks at the literature and identifies promising ideas to support employment for adults with autism in community settings. Click here to read the article.